I cried out of pure frustration. Frustration because I am 100% responsible for this sweet child of mine, her progression, the house, the things that revolve around the house, the dog, and in the midst of it all, trying to find some time for me and looking for another counseling opportunity because we need the extra income. I've been feeling emotionally drained, which is why Sunday was so welcoming because I wasn't 100% the one doing everything to keep my daughter happy. I had help and this help, even though I am extremely stubborn and bring a lot of stress onto myself, was refreshing and welcomed. So why was I crying if the previous day was a perfect one? Tired as well. Getting up when the roosters wake up and going all day with barely any breaks has seriously worn me out. I love this beautiful weather we've been having but that equates to kiddo wanting to be outside for "hours". That's well and good, but I can't just let her play outside by herself. I have to be out there with her and I can't forget about Leah too. At least it's good exercise right? By the time 9pm rolls around, I'm falling asleep on the couch. That used to be my "me" time and now I can barely converse with my husband or watch a tv show without closing my eyes. Either I need to start drinking more coffee or eat some spicy foods to keep me awake.
Another reason I cried because, and this is me going back to basics here, in those moments of pure meltdowns (from her and now from me), I realized something that so many people take for granted who don't have special needs children: my child will be three in less than three months from now and still, she can't tell me what's wrong. We still don't have back and forth conversation and most of all, and THIS IS WHY I CRIED, the loss of time that myself and many other special needs parents face, when we weren't able to experience the full effect of something such as the sweet sound of our child/children's voices at two. Okay I know what some may be thinking: "she's talking and saying words, she's made great progress, why be upset?". There's a difference between talking (back and forth conversation) and identifying things. It hit me like a ton of bricks that yes, my daughter is saying more words, but we haven't had a conversation together yet and as much as I can "pretend" that things like this doesn't bother me, that she is getting there, it still hurts at the pit of me because of that loss of experience we haven't had together as of yet.
I am trying my best to stay positive with hope and I know there will come a time when we do have our conversations about life, love and everything in between. However, I can't help but long for some of this to start happening soon. It's just a harsh reality that "soon" takes lots of time, practice and work. Ugh why can't some things be easier than others? Then I think of a great movie line: "It's supposed to be hard...If it wasn't hard everyone would do it. The hard... is what makes it great." (Can you guess the movie?). Maybe Jimmy Dugan is right. Deep breaths, exhale, better now. I got this. Thanks for letting me vent. After I exhaled, we looked right at each other and in that moment I knew that she felt the same way too. Then I picked her up, said I was sorry, held her, and we both fell asleep right after that. Maybe all she needed was some love and cuddles from her momma? I know I needed them from her and thankfully she returned the favor.
Xoxo,
Trish
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